Author(s):
Divya Varghese, Rajee Reghunath
Email(s):
dvarghese4@gmail.com
DOI:
10.52711/2349-2996.2026.00030 
Address:
Divya Varghese1, Rajee Reghunath2
1Ph.D. Scholar, 17th Batch, National Consortium for PhD in Nursing by Indian Nursing Council, New Delhi. Associate Professor, St. John’s College of Nursing, St. John’ s National Academy of Health Sciences, Bangalore.
2Ph.D Guide, National Consortium for PhD in Nursing by Indian Nursing Council, New Delhi. Principal, Amala College of Nursing, Thrissur, Kerala, India.
*Corresponding Author
Published In:
Volume - 16,
Issue - 2,
Year - 2026
ABSTRACT:
Hemophilia is a rare, chronic genetic bleeding disorder that significantly affects the physical, psychological, and social well-being of individuals and their families. Beyond the biological complications of recurrent bleeding and joint damage, patients and caregivers must also adapt to uncertainty, pain, and stigma. This concept paper explores hemophilia through a nursing perspective, focusing on the lived experiences of patients and families and the coping strategies they adopt. Drawing from existing literature and patient narratives, the paper highlights emotional, physical, and social challenges, while identifying adaptive coping mechanisms such as problem-focused strategies, family-centered care, and community-based support. A conceptual framework is proposed for nursing practice that emphasizes holistic care, psychosocial support, and empowerment of patients and caregivers. The paper argues for the integration of coping strategies into nursing education and practice to improve quality of life and health outcomes in hemophilia care.¹-5
Cite this article:
Divya Varghese, Rajee Reghunath. Conceptual Paper on Lived Experiences and Coping Strategies of Patients with Hemophilia and their Families. Asian Journal of Nursing Education and Research. 2026;16(2):143-4. doi: 10.52711/2349-2996.2026.00030
Cite(Electronic):
Divya Varghese, Rajee Reghunath. Conceptual Paper on Lived Experiences and Coping Strategies of Patients with Hemophilia and their Families. Asian Journal of Nursing Education and Research. 2026;16(2):143-4. doi: 10.52711/2349-2996.2026.00030 Available on: https://www.ajner.com/AbstractView.aspx?PID=2026-16-2-15
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